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Back from Cleveland Clinic

Well back from the clinic for toms heart appt and they decided to leave the lvad in for at least a year to let him heal completely on the inside so that will be up may 2013.They said they will re present him infront of the transplant board again next tuesday cause when you have a surgery like he had done they have to freeze his time or take him off cause unless it was dire emergency they wouldnt cut him open before 6 mos,so they said after they present him on tuesday then add him as a 1b let him accrue time then when it gets closer to the 1 yr date they will add him to 1a emergency status which means they will start looking for a heart,they say the longer you have your own heart the better cause the like span for a heart transplant is 10 yrs could be more or less but they say 10.
So after they explained the risks again we wish they could do it tomorrow but for safety reasons and whats better medically for him we have to wait,but time will fly it has already these 5 mos flew by literally,and they said since hes doing great with the implant they dont wanna rush things they just watch for signs of bleeding etc that can come with the placement of the lvad which is why we have to go to cleveland every 2-4 weeks plus they need to see how the driveline and all looks so i think i summed it all up if i remember anymore i will add it they said so much i was like a sponge trying to soak it all in thank you all for the love and support i really appreciate it

xoxoxo jenn 

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