Well back from the clinic for toms heart appt and they decided to leave the lvad in for at least a year to let him heal completely on the inside so that will be up may 2013.They said they will re present him infront of the transplant board again next tuesday cause when you have a surgery like he had done they have to freeze his time or take him off cause unless it was dire emergency they wouldnt cut him open before 6 mos,so they said after they present him on tuesday then add him as a 1b let him accrue time then when it gets closer to the 1 yr date they will add him to 1a emergency status which means they will start looking for a heart,they say the longer you have your own heart the better cause the like span for a heart transplant is 10 yrs could be more or less but they say 10.
So after they explained the risks again we wish they could do it tomorrow but for safety reasons and whats better medically for him we have to wait,but time will fly it has already these 5 mos flew by literally,and they said since hes doing great with the implant they dont wanna rush things they just watch for signs of bleeding etc that can come with the placement of the lvad which is why we have to go to cleveland every 2-4 weeks plus they need to see how the driveline and all looks so i think i summed it all up if i remember anymore i will add it they said so much i was like a sponge trying to soak it all in thank you all for the love and support i really appreciate it
xoxoxo jenn
Time to wake up
Well here we are again another sad post unfortunately maybe one day soon it will be a happy post,but I wanted to write this blog because people think i am being hard on myself and or being to negative because I made a comment on my friends toneitup pic of her sweatshirts and said i would love one but they are to small,the highest is a large.
I know what size i am and what things will not fit so no way am i being negative just facing the truth and not ling to myself about what size i am,like how people lie on dl about their weight what they want it to be,i want to be alot smaller than what i am and im working on it,but the reality is the jeans i used to wear last year no longer fit and i am back to wearing my pjs everywhere i go,cause nothing in my closet fits and i refuse to go buy clothes cause i dont wanna be here any longer than i have to...Im trying things through trial and error and hopefully next week we will have a solution.
Believe me Im the one looking in the mirror everyday and seeing the spare tire that goes all the way around me to give me a tabletop booty and a stomach apron, so im not negative im just being honest with how i look cause theres no point in fooling everyone else and myself of someone that I am not ..
So thats all for now just wanted you guys to know where Im coming from and this gives you all an insite on my feelings towards all that.I could go on and on but i wont so i hope you all understand,and hope everyone is getting their workouts it xoxoxo
jenn
I know what size i am and what things will not fit so no way am i being negative just facing the truth and not ling to myself about what size i am,like how people lie on dl about their weight what they want it to be,i want to be alot smaller than what i am and im working on it,but the reality is the jeans i used to wear last year no longer fit and i am back to wearing my pjs everywhere i go,cause nothing in my closet fits and i refuse to go buy clothes cause i dont wanna be here any longer than i have to...Im trying things through trial and error and hopefully next week we will have a solution.
Believe me Im the one looking in the mirror everyday and seeing the spare tire that goes all the way around me to give me a tabletop booty and a stomach apron, so im not negative im just being honest with how i look cause theres no point in fooling everyone else and myself of someone that I am not ..
So thats all for now just wanted you guys to know where Im coming from and this gives you all an insite on my feelings towards all that.I could go on and on but i wont so i hope you all understand,and hope everyone is getting their workouts it xoxoxo
jenn
